Tuesday, February 28, 2012

Update

 During my "journey", I have tried to embrace all elements of life that can promote healing.  At times, that has been very hard.  Seems as though I have just had way too many "rocks in the road", as John liked to say.

In the past 18 months, I have :

Watched my sweet husband be diagnosed and die from cancer

Undergo 50+ chemo treatments

Had 6+ MRIs and CT scans

Assorted X-rays, tests, and screenings

Leaking chemotherapy port which caused major pain and trauma (with ultimate removal and replacement) 

April 16th tornado that caused nearly $50K in damages to my house and destroyed so many of my beautiful trees, my neighbors' homes, a church, farms and crops, and our schools.

Hurricane Irene - more damage to my home and farm  and trees.

Had two very close friends have a cancer diagnosis, and undergo surgery and treatment thankfully, both will be okay

My brother-in-law Michael, seriously injured in a motorcycle accident (not his fault)

See my sweet Lab, Holden, be mauled and killed by a pit bull.

Had thieves steal thousands of dollars of equipment from my farm

Sell the farm and equipment we have owned for over 30 years - so many memories of the hard work John did everyday to provide for us

Start to lose feeling in my feet and hands (neuropathy) from the effects of long term chemotherapy and have damage to my mouth and teeth from dry mouth caused by chemo

 These are some of the bad things....thankfully, there have been so many more good things that have happened in my life.  If there hadn't been, I don't know how I would have survived.

As I stumbled through all these challenges, I have embraced my faith.  It has allowed me to find the strength to deal with all of this....and remarkably to remain fairly happy.  Don't get me wrong, there have been very dark days, but overall, my outlook remains bright.

Wagon still rolling....and seeking more ways to make life better.  More to come on that.
PCQ



Wednesday, February 1, 2012

I'm Back.....

Sorry to have bailed out on you for awhile.  Guess I just hit a wall with all that happened.  And when my pup Holden, was mauled and killed by a pit bull, guess it pushed my system into overload.

Just couldn't seem to get things going in the right direction.  After John's sudden death, I had to deal with his estate, then I had problems with my chemo port and after 4 months of horrid pain, I finally got the leaking port taken out and a new one put in.  At a cost of about $3000+ to me....not to mention pain and suffering.  Then there was that nasty tornado in April that nearly took my home and posted almost $50K in damages.  And my trees, it took my beautiful trees. Fast forward to hurricane season and hello Hurricane Irene.  More damage from water blown in crevices I didn't even know existed.  And what trees weren't damaged from the tornado, were pushed around by the hours of pounding rain and wind from Irene.  My chemo treatments continued to wreak havoc on my body, but I was managing.

Then Holden was killed.  It was the proverbial straw that broke the camel's back.


Can't believe he wasn't bald cause he sure shed a lot of hair.

He was one lucky dog, and we were lucky to have him.

PCQ

Saturday, October 8, 2011

Relay For Life

Greene County's Relay for Life was delayed due to the April tornado that tore through the entire county and left a wide path of destruction.  With all the damage, it would have been next to impossible for any reasonable celebration, much less, any attempts to raise money for cancer research when so many were still reeling from the losses they had.

So, it was postponed till October.  Little did we know, we would still be recovering from the tornado and more recently, Hurricane Irene.

When I received a call from the editor of the local newspaper asking for an interview, I hesitated.  Having served on our local board of education for 17 years, most of that time as chair, I have had my share of media interviews, difficult encounters, and unfortunately, many misquotes, even when the response was in written form.  But I couldn't let an opportunity pass that may help others facing difficult times.  And the past two years have been difficult times for me.  One of my friends recently told me he was surprised I wasn't in a mental institution after all I had been through. Sometimes I think maybe I should be.  Anyway, I have persevered and try so hard to keep a smile on my face and remember my many, many, blessings.

Below is the article that was published in the local paper.

 Despite obstacles, life is a journey to be enjoyed

October 5, 2011

Standard Laconic Newspaper Margaret Fisher - News Editor
SNOW HILL—It would be bad enough to be diagnosed with cancer, but how would it feel to be undergoing cancer treatments when suddenly your spouse is diagnosed and dies within a matter of months?

Pat Adams, a vibrant and cheery mother of grown children and chairwoman of the Greene County Board of Education, remains positive and upbeat despite having gone through just such an ordeal and she continues to do so.


Her great-grandmother had colon cancer, which can be inherited.  In 2004, Adams' doctor found a small growth during a colonoscopy and removed it.


She continued to have annual checkups and everything seemed fine, but in 2009, things changed one morning.


"I woke up and had a horrible pain in my leg and it's like, you know something is terribly wrong," she said, explaining the pain down her back and leg.


It went away, Adams said, so she went to work.  The next night, it came back.


Her doctor sent her to a specialist who said she had an intestinal infection, but she continued to have pain.  Eventually, she got an MRI where her doctor could see she had a growth on her tailbone that was pressing against her sciatic nerve - something the doctor had never heard of.


"Everybody said this just shouldn't be happening.  It was just in a bad, bad place," she said.  "Of course, you're horrified by all this because you don't know what's going on."


The tumor was made up of colon cancer cells.  The pain was so bad, Adams began a series of 30 radiation treatments five days a week to reduce the tumor and pain.  The risk of paralysis was great because of the tumor's position.


The treatment center was frightening because of seeing so many people, including young adults, in such a bad state and because of the equipment and being strapped intightly so she couldn't move, Adams said.


While the pain lessened, there were side effects.  She lost a third of her thick blonde hair.

"(The laser) destroys a lot of good tissue, too.  It passes through the intestines and the bladder,"  she said.

The burns hurt and she couldn't get comfortable.  Eventually, she began to feel a little better.  At some point during treatments, she started on chemotherapy pill all the while being subjected to a barrage of tests.


A team of doctors were deciding what they should do.  One idea was to cut off the tip of her tailbone and remove the growth, but that was later rejected.


"The doctor said, 'I can't guarantee to get all the growth and you could be paralyzed.  The risk is too high,'" she said.


In March 2010, Adams went to the Mayo Clinic in Rochester, Minn., for a second opinion.  The doctor said removing the tumor would be like tearing up the foundation of a house to get one potato underneath it.


In April, she was taking chemotherapy intravenously.  They had put a port in the left side of her chest to administer the chemo.  The effects were terrible.

"It was an absolutely horrible drug to take.  I couldn't take any cold.  I had to put gloves on to get something out fo the refrigerator," she said, likening the cold to getting an electric shock.


The tumor was growing to the size of an orange, so they switched to another drug.


All the while, Adams kept having pain in her arm and shoulder and thought she had pulled a muscle so she began therapeutic massages and accupuncture.  The pain worsened to her jaw and ear, she suspected the port, but the doctor said the port was fine.  When she threatened to pull the port out, the doctor removed it.


"When I woke up from surgery, I knew it didn't hurt.  My arm was fine," she said.  The doctor told her she was right - there was a pinhole leak in the port.  They put another port in on the other side, which has caused no trouble, she said.


But chemo was taking a toll.  Her fingernails thinned, she was having nosebleeds and she got a terrible case of thrush, or yeast infection, in her mouth and esophagus.


She deals with the side effects of high blood pressure and neurological problems in her hands and feet, and can't have any more radiation because of the tissue damage.


"Just when you think you've had all you can have, another problem pops up," she said.

Meanwhile, in June of 2010, her husband, John, who had been lovingly taking care of her, was diagnosed with lung cancer.  He hadn't smoked in years.  When a lymph node swelled up, the doctor thought he had an infection.  A few weeks later, a tumor was discovered in the passageway to his lung and it couldn't be removed.  Pat was now taking care of him.  In November 2010, he died.  He was talking and on no pain medication, Adams said.


"It was probably the hardest time in my life.  John was such a strong and vivacious person.  I'm just glad that things went as quickly as it did with him," she said, as she broke out in tears.  "I think the trauma of my illness possibly caused him to be sick.  Stress - we really underestimate what stress does to the body."


Her husband's sickness began about the time things were really getting difficult for her.


Today, she continues unending chemotherapy every two weeks.  Her tumor is dead on the outside, (damaged by the radiation) but still active in the center," she said.


"The chemo cocktail is working right now.  It's keeping the tumor controlled, but the cancer won't go away," she said.


She is hopeful, that a doctor at Johns Hopkins in Baltimore, Md., might be able to help.


As she relaxes in her living room against the backdrop of huge plate glass windows displaying a picturesque view, Adams said she is happy to look at nature, the sky, and to have good friends and family.  "I thinkI have always looked at life as not a destination, but a journey.  I enjoy every day," she said.  "It just makes you more appreciative of all these things(to look at)."


Along with everything else, her house was damaged in the April tornado and her dog died.  And she very much dislikes listening to complainers.


"You start looking at all these (bad) things, but I still feel very blessed because I have my faith, family, and friends," she said.  "As strange as it sounds, I'm still a very happy person."


Adams has set up the John Quincy Adams V Agricultural Scholarship to begin next year for a Greene Central High School student.  It's hope for the future.


"Somebody asked me, 'How long do you have?'" she said, "I wanted to say, 'how long does anyone have?'"

End of article....but not the end!

PCQ

Saturday, August 20, 2011

Before and After




Before....

After.....






Before....

After.....






Lot of work has been done and still much that needs to be completed.  I think I have reached a plateau where things are manageable and I have hit the pause button.   Maybe I'll get it all done eventually.



PCQ

Saturday, August 6, 2011

Happy Birthday Sweetheart!


Wednesday was John's birthday.  Seems as though it was only yesterday that we celebrated last year.  Who could have imagined it would be his last.?  So much has happened since then, but I will have to say, it was a joyous night.  Meredith was able to sneak home for a few days and we gathered up a few friends for a party.


Lauren had mailed a package of goodies for her dad's birthday from Paris.  She was there for the summer.  John and I were planning/hoping to join her, but medical issues interrupted that dream.



Me, Meredith, and John, after his wonderful birthday dinner.  He was so happy that night.




Meredith and John




John's birthday dinner.


As I look as these photos, one thing jumps out at me, John was happy.  Look at that smile.

And that makes me happy now.

PCQ

Monday, July 25, 2011

Beach

You know when I don't post, I'm either busy or sick.  Thankfully, most of it has been "busy having fun"!

Went to my annual two week beach trip with friends and family.  This was our 33rd year together in the same place at Atlantic Beach.  Hard to believe it has been that long.  But it has.  Our children are all grown now and all of them working and embracing jobs they enjoy.....and with benefits.  Who would have thought that would mean so much?

But, back to the beach, did I say I had fun?  Well, I did.  But how can you not have fun when you are surrounded by people you love and who love you?


Beach 2011

This was our group photo....and yes, all those wonderful people were housed in the cottage you see behind us.  (Well, a few of them stayed across the street.) We do play well together. That's me on the right with the Segway.  The Club Colony July 4th Parade had just marched past and I was decorated and ready.  From the local talk, it is my understanding I was the first Segway entry in the parade.....ever.  I'll take that.  Love breaking new barriers.

I'll post more about the beach.  Just wanted to let everyone know I am okay.  Hot...but okay.

Wagon still rolling.
PCQ


Tuesday, July 12, 2011

Strong Presence

I was reading a story recently about a family that was struggling with the death of their son.  "He had a 'strong presence' and it feels like he is still here with us," the father said.

The words resonated in my soul.  That's how I feel about John....he had a very 'strong presence' then and now, and though I know he is gone, I feel him in everything I do and everywhere I go.  Sometimes it even feels like a dream.  I'm going to wake up and everything will be be all normal again.  Not sure how long this lasts.  I know there are stages for grief and everyone progresses through those stages at their own pace.  We are all different but sometimes so much alike.

I like to smile, it hides the pain. And I read that smiling tricks your body into "thinking" you are happy, just by using those muscles.  I do know it makes other people feel better and that in turn helps me.  So, I'll keep smiling and hope it is true.  But that "strong presence" may never go away.  And I don't know if I want it to.

PCQ

Sunday, June 26, 2011

Remission - What does that mean exactly?




My daughter, Lauren, was with me when I was given the results from my last CT scans.  As I have told you before, it is difficult not to dwell on the "what ifs" as you wait for results that may abruptly alter your life even more than it already has been.  But, when Dr. White came in smiling, we knew it must be good.  "There's no new growth, everything is the same," she said.

With that, I exhaled.  She went on about my blood numbers, what we needed to do next and then in one of her statements mentioned, remission.  We talked about other options.  Lauren questioned her about the possible damage from the leaking port that had been removed in April.  "Obviously, not a good thing to happen," she said, "but, the treatment you are on can be absorbed by the tissue without major damage."  Somehow, that was not as comforting as I would have liked.

But on to other concerns. She said, "Remission!"  Remission is a term that doctors frequently use and it refers to the response of the cancer to the therapy. A complete remission means that the cancer has completely disappeared with the treatment.  I do not have complete remission and remission does not mean a patient is cured.  So...I am hesitant to even say that word cause I am still having chemo, and enduring all the side effects that come along with it.   Just means the cancer hasn't changed in the past few months and that is a very good thing.  Last year this time, the treatments were not working and I didn't know if I would see the beach this summer.  But I am still here!

Anyway, I am having a PET scan this week at the PCMH.  Not sure what day yet, seems it takes a while to get it cleared with insurance.  This test will tell us how much of my tumor is scar tissue and how much is "active".  I may be a candidate for a procedure at the Mayo Clinic in Florida, but we have a few tests we must do first.  I'll keep you posted.

But most important, it's summer.  Please enjoy every minute if only for ME!  When you look out your back door, really look at the birds, the lightning bugs, the sky, the leaves on the trees.  Don't sleep walk through life cause take it from me.....it's not the destination it is the journey.

PCQ

Tuesday, June 21, 2011

2011 Big Rock Tournament



Dance like no one is watching.  And if you can't dance, do something to push yourself to live everyday and have fun.  Go fishing...or if you can't fish, cut bait.  And if you can't fish or cut bait, watch other people do it.

Been trying to do that.  My friend, Joanie, called me last week and said, "Come down to the beach and stay with me for the Big Rock Tournament".  She didn't have to ask twice.  She was staying in a great cottage just off the beach.  Just so happens that it is owned by one of John's business friends.  They don't rent it out much, but knew John's friends would be good folks to have.  And we sure tried to be.

But back to the tournament, it was fun.  Three marlin were brought in Monday, the first fishing day, and Joan was there for them all.  Loved seeing the excitement in her eyes!




John and I usually try to get down to the tournament every year.  He has actually fished in the tournament in the past. Last year, we took the RV to spend the night. But this year wasn't easy.  Every place John and I stood last year, everything we did, was in my mind as Joan and I walked about.  They are good memories though. We got to see a few of the big ones brought in, but we weren't there for the biggest controversy probably to ever hit the tournament.  The biggest fish caught last year was eventually DQ!

The controversy surrounding the 2010 Big Rock Blue Marlin Tournament’s top prize really got everyone stirred up and the media coverage went crazy. Tournament officials stopped the awards presentation due to a rules violation by the Boat “Citation”. That crew actually caught a record-breaking 883-pound Blue Marlin and was set to receive the top prize of more than $900 K.  Enough money to get your attention.  But due to a rules violation, one of the crew didn't have his fishing license...they never got the check.  Rules are rules, and if you're not going to follow them, then you are subject to the penalty....but $900K...man that is a bite!   Bet that captain never makes that mistake again.

The unlicensed young man who was part of the Citation crew was from Virginia.  My daughter, Meredith, had actually gone fishing the week before with friends on a boat out of Hatteras and he was part of that boat's crew, so she knew him.  As it turns out, it is my understanding that you don't have to have a personal license in Virginia, the boat has to be licensed, but the rules are different in North Carolina.  First thing you must do is follow the rules!

Back to this year's tourney, we got to see them bring in the winning fish.  Of course, we didn't know that then...there was still a week of fishing left.  And Joan realized there really is a "big rock" out in the ocean where everyone goes to fish for the big ones, hence the name for the tournament.

So, again this year I got the flavor of the Big Rock.  Saw a huge yacht come in to dock at Morehead City, too.  Fourth largest privately owned yacht in the world.  At least that's what it said when I googled the name, SeaFair, that was on the side. 200+ feet long, $40M+, nice to see how the rich folks live.  Boat was on its way to Rhode Island, apparently, it was for floating art and jewelry shows and had a champagne and caviar bar.  Well, well, Morehead City was certainly in good company with that fine boat.

Joan and I had a great time together talking, rummaging through second hand stores, and just enjoying the smell of seafood and the beach.

Thanks Joanie....pulling my wagon to the beach was a load of fun.

PCQ







Sunday, June 19, 2011

Happy Father's Day



It's Father's Day, our first without John.  I didn't think it would be so hard.

When I awoke this morning, I was blessed to be with dear friends and.... to be able to look out my bedroom window and see the sun coming up on the Pamlico River.  The river has given me and my family many, wonderful and warm memories.

So I guess it was fitting that I was there on the first Father's Day without John.  As I looked at the river, it reminded me of all the fun things John did for us and my daddy.  Hours and hours of driving the boat, pulling us from one end of the river to the other on all the water toys, sailing, checking nets and crab pots, you name it, John would make it happen.

Our simple place on the river was a refuge for family and friends, providing a backdrop for precious time with my dad, (he loved to set fish nets), our girls with their "Papa Lee", and so much learning for us all.  Our girls learned how to ski there, how to tell the difference between a she crab and a male....and whether it had eggs, or was ready to shed and become a summer delicacy as a soft shell crab.  We went on shark teeth and lightning bug hunts, could identify the fish we caught, knew where all the osprey nests were and learned the rules of the river.

But as I lay there looking out across the water, my thoughts returned to last year.  Meredith came home for Father's Day, to spend time with her daddy and to cook a wonderful dinner for him.  And what a grand meal it was.






John's lymph node on his neck was swollen and Dr. Barrow had put him on antibiotics.  I remember so well him telling Meredith about it that day. Didn't seem like a big deal at the time.  Little did we know what was to come.  His lymph node swelled the week after we found out the tests and scans showed my tumor was growing... my chemo treatments were not working.  

Coincidence?  

PCQ